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Make a donation and help fund research for a cure. Debra of america is here to guide you in caring for your baby with epidermolysis bullosa (eb). Learn about epidermolysis bullosa (eb), a rare genetic disorder, its symptoms, treatments, and personal stories from the eb community at debra of america.

Debra Paget Photograph by Silver Screen

For more information or if you have any questions, feel free to contact us at Learn more about our work. Get to know the dedicated team behind debra of america, working tirelessly to support individuals and families affected by epidermolysis bullosa (eb).

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Debra of america is part of debra international, a worldwide network of national groups working on behalf of all people living with epidermolysis bullosa (eb).

Explore our mentorship programs, eb nurse educator program, new family advocate program, debra care conference & additional support services. When there seems to be no way out, there's debra of america, a lifeline for thousands of families living with “the worst disease you’ve never heard of,” epidermolysis bullosa (eb). Learn about debra of america's team working to raise eb awareness, and provide eb support to patients and families affected by epidermolysis bullosa (eb). Founded in 1980, debra of america is dedicated to improving the quality of life of all people impacted by epidermolysis bullosa (eb) in the u.s